Our Daughters Foundation Blog:

Insights, Support & Latest Research

Explore articles, expert interviews, and personal stories designed to empower and inform.

Our Daughters Foundation Blog: Insights, Support & Latest Research

Explore articles, expert interviews, and personal stories designed to empower and inform.

My Story: Krissy Duenkel

My Story: Krissy Duenkel

Krissy Duenkel shares about her journey with endometriosis and why she is joining in on the fight for all women with this disease. "On average 8 years from symptoms to diagnosis, repeated surgeries, d... ...more

Personal Stories

July 25, 20252 min read

Endometriosis: A Cancer-Mimicking Disease 

Endometriosis: A Cancer-Mimicking Disease 

Endometriosis: Why Scientists Say It Should Be Treated Like Cancer. It spreads like cancer; It grows its own blood supply; It avoids the body’s defenses; It messes with cell signals; It can increase c... ...more

Breaking News

July 17, 20253 min read

Endometriosis, Adenomyosis, and PCOS Autoimmune Conditions

Endometriosis, Adenomyosis, and PCOS Autoimmune Conditions

Immune dysfunction: a key link in chronic conditions, impacting future treatment. ...more

Breaking News

July 17, 20253 min read

GUT FEELINGS: The Hidden Link Between Gut Health and Hormonal Imbalance

GUT FEELINGS: The Hidden Link Between Gut Health and Hormonal Imbalance

Discover the hidden links and how optimizing gut health can transform your well-being. ...more

Breaking News

July 17, 20252 min read

Breaking the Silence: Why Endometriosis Took So Long to Be Taken Seriously and What’s Finally Changing

Breaking the Silence: Why Endometriosis Took So Long to Be Taken Seriously and What’s Finally Changing

For millions of women around the world, the story of endometriosis is one of pain, dismissal, and delay. But after decades of silence, the tide is beginning to turn. ...more

Endometriosis ,Breaking News

July 17, 20253 min read

The Overlooked Link: Allen-Masters Syndrome and Endometriosis

The Overlooked Link: Allen-Masters Syndrome and Endometriosis

How a Little-Known Condition Can Complicate Diagnosis and Treatment for Women in Pain ...more

Endometriosis

July 15, 20253 min read

Game Changer: World-First Endometriosis Research Institute

Launched at UNSW, Fueled by Landmark Donation

By Larissa Baiocchi | May 20, 2025

This is truly a groundbreaking moment for the millions of individuals worldwide battling endometriosis. A landmark philanthropic donation of an incredible $50 million has been made to UNSW Sydney by the Ainsworth family, establishing the Ainsworth Endometriosis Research Institute (AERI). This monumental contribution, the largest of its kind globally for endometriosis research, is set to position Australia at the forefront of women's health innovation and offers unprecedented hope to the endometriosis community.

The purpose of this historic donation is clear: to accelerate breakthroughs in the diagnosis and treatment of endometriosis, ultimately striving for a cure. AERI's vision is to foster global collaboration, bringing together leading researchers, clinicians, and crucially, patients, to build a deep understanding of endometriosis biology and its pathogenesis. This comprehensive approach is designed to lead directly to improved detection, more effective management strategies, and precision-based treatments that can truly transform lives.

The potential impact on patient care and quality of life is immense. For too long, endometriosis has been misunderstood, misdiagnosed, and often inadequately treated. An institute dedicated solely to rigorous, collaborative research holds the promise of unraveling the complexities of this debilitating condition, leading to real, tangible improvements for those who suffer daily.

At Our Daughters Foundation, this news is incredibly vital to our mission. We are dedicated to funding cutting-edge research, expanding access to compassionate care, and advocating for better solutions for complex hormone-related illnesses like endometriosis. This establishment of AERI perfectly aligns with our commitment to finding answers and ensuring dignity in care for every woman and girl. It's a powerful testament to what focused investment and collaborative spirit can achieve in the fight against these often-neglected conditions.

Join us in celebrating this incredible milestone!

Share this news with your networks, and consider supporting ongoing endometriosis research. Your contribution can help fuel more breakthroughs like this. Explore more about endometriosis and how you can help on our website.

The Overlooked Link: Allen-Masters Syndrome and Endometriosis

How a Little-Known Condition Can Complicate Diagnosis and Treatment for Women in Pain

What Is Allen-Masters Syndrome?

Allen-Masters Syndrome (AMS) refers to a condition where the ligaments that support the uterus become torn or stretched, often due to trauma or childbirth. The damage causes the uterus to become hypermobile, or “floppy,” which can lead to chronic pelvic pain, abnormal uterine positioning, and a range of gynecological symptoms.

First described in the 1950s by gynecologists Allen and Masters, the syndrome was initially observed in women who experienced difficult or forceful deliveries. However, it's now known that other pelvic trauma—such as surgeries, repeated inflammation, or even invasive endometriosis—can also play a role.

How It Feels: The Symptoms

The symptoms of AMS often overlap with other pelvic disorders, including endometriosis, which makes it incredibly hard to diagnose:

- Chronic pelvic pain, especially on one side

- Pain during intercourse (dyspareunia)

- A feeling of “heaviness” or dragging in the pelvis

- Irregular bleeding or spotting

- Referred pain to the lower back or legs

- Pain made worse by certain movements or positions

These symptoms can persist even after surgery for endometriosis or fibroids, leaving women frustrated and wondering why their treatments didn’t work.

The Complication with Endometriosis

Endometriosis and Allen-Masters Syndrome can coexist—and when they do, they complicate each other.

Here’s how:

1. Mimicking or Masking Each Other

AMS pain can feel nearly identical to endometriosis. In laparoscopic surgery, torn ligaments or peritoneal defects might be mistaken for endometriosis—or missed entirely.

2. Worsening Each Other

The uterine instability caused by AMS may increase friction and inflammation in the pelvis, potentially exacerbating endometriosis symptoms. Likewise, the invasive nature of endometriosis can weaken uterine ligaments, creating a cycle of worsening pain.

3. Delaying Diagnosis

Because AMS isn’t well known, many surgeons focus only on excising visible endometriosis lesions. If ligament tears or pelvic instability aren’t also addressed, pain may persist despite "successful" surgery.

4. Influencing Fertility

While endometriosis is a known contributor to infertility, AMS can add to the challenge by altering the position of the uterus, interfering with sperm transport, or making embryo implantation more difficult.

Diagnosis: Why It’s Often Missed

AMS is best diagnosed through clinical examination and often requires a high index of suspicion from an experienced gynecologic surgeon. Imaging like MRI or ultrasound may not show ligament damage clearly. In some cases, laparoscopic exploration is the only way to confirm it, by observing a hypermobile uterus or peritoneal defects (like dimples or windows in the pelvic lining).

Unfortunately, many OB/GYNs are not trained to look for Allen-Masters Syndrome, which means it’s often overlooked—especially in patients already diagnosed with endometriosis.

What Can Be Done?

If AMS is suspected, the treatment may include:

- Pelvic physical therapy to support surrounding muscles and reduce pain

- Surgical repair or suspension of the damaged ligaments, often during laparoscopy

- Pain management strategies including nerve blocks or hormonal regulation if endometriosis is also present

- Lifestyle modifications to reduce strain on the pelvis (avoiding certain exercises, managing constipation, etc.)

The Takeaway

Allen-Masters Syndrome may not be as well-known as endometriosis, but its impact is very real—especially for women who feel like they've tried everything and still have no answers.

If you’ve had surgery for endometriosis and your pain persists, or if your symptoms don’t quite fit the typical endo profile, it might be worth asking your doctor about Allen-Masters Syndrome.

Women deserve full answers—not partial relief.

Sources & Further Reading

- Howard FM. (2003). Chronic Pelvic Pain. Obstetrics and Gynecology

- Vercellini P et al. (2006). Chronic pelvic pain: pathogenesis and therapy. Best Practice & Research Clinical Obstetrics and Gynaecology

- Tu FF et al. (2017). Beyond Endometriosis: Recognizing and Treating Comorbid Pelvic Pain Disorders. Clinical Obstetrics and Gynecology

Beyond Endometriosis: Uncovering Allen-Masters Syndrome for Lasting Pain Relief

Persistent pain after endometriosis surgery? Learn about Allen-Masters Syndrome.

4-Minute Read

Breaking the Silence: Endometriosis is Finally Getting the Attention It Deserves

Discover how new breakthroughs, increased funding, and powerful advocacy are finally changing the narrative for endometriosis.

5-Minute Read

Gut Feelings: Unveiling the Deep Connection Between Your Gut and Hormonal Health

Discover the hidden links and how optimizing gut health can transform your well-being.

4-Minute Read

The Immune Connection: Are Endometriosis, Adenomyosis, and PCOS Autoimmune Conditions?

Immune dysfunction: a key link in chronic conditions, impacting future treatment.

6-Minute Read

Blog Articles

My Story: Krissy Duenkel

My Story: Krissy Duenkel

Krissy Duenkel shares about her journey with endometriosis and why she is joining in on the fight for all women with this disease. "On average 8 years from symptoms to diagnosis, repeated surgeries, d... ...more

Personal Stories

July 25, 20252 min read

Endometriosis: A Cancer-Mimicking Disease 

Endometriosis: A Cancer-Mimicking Disease 

Endometriosis: Why Scientists Say It Should Be Treated Like Cancer. It spreads like cancer; It grows its own blood supply; It avoids the body’s defenses; It messes with cell signals; It can increase c... ...more

Breaking News

July 17, 20253 min read

Endometriosis, Adenomyosis, and PCOS Autoimmune Conditions

Endometriosis, Adenomyosis, and PCOS Autoimmune Conditions

Immune dysfunction: a key link in chronic conditions, impacting future treatment. ...more

Breaking News

July 17, 20253 min read

GUT FEELINGS: The Hidden Link Between Gut Health and Hormonal Imbalance

GUT FEELINGS: The Hidden Link Between Gut Health and Hormonal Imbalance

Discover the hidden links and how optimizing gut health can transform your well-being. ...more

Breaking News

July 17, 20252 min read

Breaking the Silence: Why Endometriosis Took So Long to Be Taken Seriously and What’s Finally Changing

Breaking the Silence: Why Endometriosis Took So Long to Be Taken Seriously and What’s Finally Changing

For millions of women around the world, the story of endometriosis is one of pain, dismissal, and delay. But after decades of silence, the tide is beginning to turn. ...more

Endometriosis ,Breaking News

July 17, 20253 min read

The Overlooked Link: Allen-Masters Syndrome and Endometriosis

The Overlooked Link: Allen-Masters Syndrome and Endometriosis

How a Little-Known Condition Can Complicate Diagnosis and Treatment for Women in Pain ...more

Endometriosis

July 15, 20253 min read

My Story: Lisa Tierney-Keogh

My Story: Lisa Tierney-Keogh

Endometriosis doesn’t just cause pain—it steals time, trust, and sometimes even hope. Lisa’s powerful story in The Irish Times is a heartbreaking example of how many women wait years—sometimes decades... ...more

Personal Stories

July 15, 20253 min read

The Hidden Struggle: Adhesions & Surgery 

The Hidden Struggle: Adhesions & Surgery 

Women face difficult decisions when adhesions cause pain and medical complications. Surgery can remove the adhesions, but surgery also causes adhesions to form. How can we make informed choices on thi... ...more

Endometriosis

July 13, 20253 min read

Blog Disclaimer

The content shared on the Our Daughters Foundation blog is intended for informational and educational purposes only. While we strive to curate accurate, up-to-date information and highlight recent research, not all contributors to this blog are licensed medical professionals.

Some of our posts may include personal stories or reflections, which are shared to foster community, raise awareness, and offer hope. These should not be interpreted as medical advice or a substitute for consultation with a qualified healthcare provider.

We encourage readers to use the links and resources provided to further explore the topics discussed and to consult their own healthcare providers before making any decisions about diagnosis, treatment, or care.

Beyond Endometriosis: Uncovering Allen-Masters Syndrome for Lasting Pain Relief

Persistent pain after endometriosis surgery? Learn about Allen-Masters Syndrome.

4-Minute Read

Breaking the Silence: Endometriosis is Finally Getting the Attention It Deserves

Discover how new breakthroughs, increased funding, and powerful advocacy are finally changing the narrative for endometriosis.

5-Minute Read

Gut Feelings: Unveiling the Deep Connection Between Your Gut and Hormonal Health

Discover the hidden links and how optimizing gut health can transform your well-being.

4-Minute Read

The Immune Connection: Are Endometriosis, Adenomyosis, and PCOS Autoimmune Conditions?

Immune dysfunction: a key link in chronic conditions, impacting future treatment.

6-Minute Read

Latest Blog Articles

My Story: Krissy Duenkel

My Story: Krissy Duenkel

Krissy Duenkel shares about her journey with endometriosis and why she is joining in on the fight for all women with this disease. "On average 8 years from symptoms to diagnosis, repeated surgeries, d... ...more

Personal Stories

July 25, 20252 min read

Endometriosis: A Cancer-Mimicking Disease 

Endometriosis: A Cancer-Mimicking Disease 

Endometriosis: Why Scientists Say It Should Be Treated Like Cancer. It spreads like cancer; It grows its own blood supply; It avoids the body’s defenses; It messes with cell signals; It can increase c... ...more

Breaking News

July 17, 20253 min read

Endometriosis, Adenomyosis, and PCOS Autoimmune Conditions

Endometriosis, Adenomyosis, and PCOS Autoimmune Conditions

Immune dysfunction: a key link in chronic conditions, impacting future treatment. ...more

Breaking News

July 17, 20253 min read

GUT FEELINGS: The Hidden Link Between Gut Health and Hormonal Imbalance

GUT FEELINGS: The Hidden Link Between Gut Health and Hormonal Imbalance

Discover the hidden links and how optimizing gut health can transform your well-being. ...more

Breaking News

July 17, 20252 min read

Breaking the Silence: Why Endometriosis Took So Long to Be Taken Seriously and What’s Finally Changing

Breaking the Silence: Why Endometriosis Took So Long to Be Taken Seriously and What’s Finally Changing

For millions of women around the world, the story of endometriosis is one of pain, dismissal, and delay. But after decades of silence, the tide is beginning to turn. ...more

Endometriosis ,Breaking News

July 17, 20253 min read

The Overlooked Link: Allen-Masters Syndrome and Endometriosis

The Overlooked Link: Allen-Masters Syndrome and Endometriosis

How a Little-Known Condition Can Complicate Diagnosis and Treatment for Women in Pain ...more

Endometriosis

July 15, 20253 min read

Blog Disclaimer

The content shared on the Our Daughters Foundation blog is intended for informational and educational purposes only. While we strive to curate accurate, up-to-date information and highlight recent research, not all contributors to this blog are licensed medical professionals.

Some of our posts may include personal stories or reflections, which are shared to foster community, raise awareness, and offer hope. These should not be interpreted as medical advice or a substitute for consultation with a qualified healthcare provider.

We encourage readers to use the links and resources provided to further explore the topics discussed and to consult their own healthcare providers before making any decisions about diagnosis, treatment, or care.

Join Us: Make a Difference Today

Your support can transform lives. Every donation helps us fund research, advocate for better care, and provide essential grants to women facing debilitating conditions.

Join Us: Make a Difference Today

Your support can transform lives. Every donation helps us fund research, advocate for better care, and provide essential grants to women facing debilitating conditions.

© Our Daughters Foundation - All Rights Reserved

© Our Daughters Foundation - All Rights Reserved